Brain in Overdrive!

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

19000 steps

No weigh in again this week. I did have every intention of going! Woke up 5 minutes before my alarm, went to the loo, got back into bed, and don’t remember a thing for another 2 hours.

My head is all over the place this week, I think I’ve had too much time on my hands to think.

I know it’s most probably down to me not feeling well, but the ever so wonderful depression is sneaking in again.

I’ve come to the conclusion that I haven’t got the energy or strength to work full time, and live.

For the last year all I’ve done is go to work, and sleep. I get up, go to work, come home, eat, go to bed, and that’s it. Weekends aren’t much more exciting. I go out for an hour or so Saturday morning, make some soup or do some other food prep on Sunday, possibly go out for a walk to our local park and that’s it.

I’m not sleeping properly, even though I’m so incredibly tired all the time. I’m in constant pain, it hurts to sit, it hurts to move.

I’ve tried this for almost ayear now, and it’s not getting any easier, if anything, it’s getting harder.

Now I know all this is due to my Lupus, even the depression comes with it, but I don’t know what to do about it.

I can’t give up work, and I’m not sure I want to, but I certainly don’t want to just work.

I know it’s tough on hubby too, he doesn’t know what to do to make it better for me either, and he worries so very much about me, and I don’t want that, so I’m not talking about it much, trying to hide it, but he sees the pain in my eyes when I stand, or sit for too long.

I figure I need to go and speak to my doctor, see what my options are, but that also feels like admitting defeat, admitting that I can’t cope, and I’m a stubborn madam, I don’t want to give in.

Sure all will be fine once this virus clears properly, but I do need to shake myself up a bit.

Anyway -till next week

Much love

Instagram. #michelle1969

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Feeling sorry for myself

This is going to be a very wallowing in self pity post!

Feel free to skip it, and I will return to my normal positive self shortly.

So! I’m not well! I have a viral infection! And I feel like crap!

Now I don’t know if it’s the virus that’s so bad, or the Lupus that makes it worse, or the meds I’m on that make me more prone! Whatever the reason – I wish it would do one!

Started off last Wednesday with a sore throat, and went down hill rapidly from then.

A bit of background – Lupus is an autoimmune disease which means my body basically attacks itself, and I’m on really strong tablets to lower my immune system to protect my body a bit.

Unfortunately this means that I pick up anything & everything.

It’s currently 1am, and I’m lying in bed in pain!

Everything is hurting, and I mean everything! The worst pain is in my legs, my shins and ankles, and my hips! But my hands are bad too, and my shoulders.

When I stand up at the moment, my joints are in agony, and I have to stand for a minute or two for them to adjust to the new angle! I’m having to go up the stairs on all fours as my knees can’t support the weight while stepping!

I’m struggling to hold my phone, actually, I’m not holding it, it’s laying on my pillow & I’m typing with one finger.

On top of this, my throat is sore, it hurts to swallow! Although I have found that whole meal toast scratches my throat and gives me some relief! My nose is streaming! I’m doing a very good impression of Rudolph! And I have the most awful hacking cough! That alternates between making me sick and crying!

Been to the doctors and she’s signed me off work for 2 weeks! My chest is clear at the moment, but I’m to do deep breathing exercises to keep it that way! I have a slight temperature and a slightly inflamed throat. Nothing to risk a course of antibiotics just yet! I’ve just got to ride it out for now. Plenty of fluids, plenty of painkillers, plenty of rest!

I’ve got my normal bloods in the morning so that will put my mind to rest that it is just a virus and not a flare! I do know it’s not, but no harm in being sure!

I hate being ill so much, I hate not being able to have fun with hubby, or just enjoy being with him! Both of us work full time and are shattered when we get home, so our time together when we are awake is precious.

I hate being ill so much, I hate seeing the concern and worry in my sons eyes! He really struggled when I was bad, and he is so protective of me now!

I hate being ill so much, I hate worrying my mum & dad! They want to look after me, and they struggle with not being able to.

I hate being ill so much, I hate hearing my friends worry about me!

I hate being ill so much, I hate not being able to do things around home! I don’t do an awful lot anyway, but putting the extra pressure on hubby to look after me as well is horrible.

I hate being ill so much, I hate letting my boss down! I love my job, and enjoy it, and have a lot of responsibility & I can’t be there to get it done!

My dying swan act is still very raw for my close ones, and I know how difficult all this is for them.

The sooner I get over this, the better! So Doctors orders will be followed.

If you made it this far, thank you for listening! Normal service will resume shortly.

πŸ’œπŸ’œπŸ’œπŸ’œ

The best laid plans …..

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

24000 steps

Floored this week. Wednesday afternoon I started with a sore throat, nothing much really, just a bit dry.

Thursday morning, just after midnight I woke up in agony! Literally everything hurt, my feet, my ankles, my shins, as well as all the normal bits that hurt daily, only so much worse. And my head! I have no words!

I honestly couldn’t lie or sit in any position as it hurt to touch anything, I didn’t know what to do with myself.

Took the day off work and phoned my nephrologist who told me I needed to speak to my rheumatologist. He thought it was “just” a flu bug, rather than a flare, and told me to drink plenty, take regular pain killers – which I do anyway, and bed rest. If no better on Monday I should phone back. It was a relief to know they didn’t think it was a flare – that was freaking me a bit.

And that’s pretty much been me for the last 4 days.

I’ve stopped crying with the pain now at least, but it’s gone to my chest and my nose has kicked off today. But I slept last night, which is the best feeling.

So no weigh in, but I did sneak a peek on my scales, and I’m happy with how things are going, at least I haven’t had the energy to go off plan either.

I’m beginning to realise there’s more to this Lupus thing than I first thought. Yes, I know it’s serious, and I know it’s bad, and it’s going to effect my life, but I’ve had a couple of bugs in the last couple of months, and they have both completely floored me. Now I don’t know if that’s down to the Lupus, or the meds I’m on, or a combination of the both, but whatever it is, it’s not good, it’s getting me down, and really struggling to find the positive in all of this just now. I hate having no control, I hate not being to get up and fight through it, I hate having to give into it, I hate being unreliable.

Anyway – till next week ….

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

Recurring Dream

The last couple of weeks I’ve had the same dream, actually that’s not strictly true – they’ve been different dreams, but always had the same ending.

With the sound of a drill!

I know where this is coming from, but I have no idea why.

When I was in hospital, one of the things I remember is waking up hearing a drill, and I had no idea why, it just didn’t make sense, I knew I was in hospital, not a dentist, so where was it coming from?

Stupidly I asked!

Oh! We can’t get a line in anywhere so we are drilling through your shin!

Oh ok then! and that’s all I remember about that, I was out of it again.

When I did come round again, sure enough I had something sticking out of my leg. They didn’t end up using it, but it was there in case my veins crashed again.

So that’s where it’s coming from.

Why it’s started playing on my mind I don’t know.

After I’d been home for a few weeks, I wrote down all my experiences, and what had happened, the bits I remember, and the bits Hubby and Mum & Dad told me.

I’ve re-read this today, and the drilling is there, but just as an after thought, and only a line or two about it, so I figure it wasn’t that traumatic in comparison to everything else that happened.

So pretty much – I’m non the wiser.

Hopefully it’ll go away now I’ve shared it here, and I can go back to my normal wacky dreams.

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

Trying to run again

The last few weekends I’ve been out ‘running’ and when I say running I actually mean power walking with a few attempts at a very slow jog.

The two times I’ve been out have been completely different experiences.

The first time was wonderful and magical and exciting.

I have always loved running with all my heart, and I have missed it so very much. Going out and actually putting a bit of speed into my walk was …… I don’t even have the words for how I felt – it was just so good! It reminded of how much I enjoy it, how free I feel, how all my troubles fall away! And I’ve got so many more now – running is needed.

I was on a high for the rest of the day.

The second time I went out – it was painful! Nothing felt right, my walking was off, and when I did attempt to jog, it actually felt like I’d forgotten how to run. My legs hurt, my chest was tight, even my neck and shoulders hurt.

It was horrible and I was so glad it was over. I spent the rest of the day feeling sorry for myself!

It’s taken me a few days to write this as it really upset me – my running is the one thing I’m holding on to – in my mixed up head I think if I can run again everything will be better.

I know it won’t! And I know that I will never run again like I used to! But it still hurt knowing how far away I am from any normality.

Anyway – next weekend I will go out again! I need to get the feeling of the first time out back into my heart, not the second time.

I’m not one to say never, being a stubborn madam, so let’s just wait and see what happens next time.

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

A Tough Week!

Week 3

15 stone 11lb.

3 stone 11lb to goal

-2.5

43000 steps

This has been a really tough week for a few reasons!

I think the previous week caught up on me and I was so very tired, and just a little bit run down!

Sunday evening my lips started tingling! A sure sign the dreaded coldsores were about to strike!

It’s been over 2 years since I’ve had 1, and I honestly believed I was done with them! But they reminded me with a vengeance I wasn’t!

Monday morning saw me wake with fat lips! 4 massive, stinging ugly cold sores, and I just wanted to cry!

All day I could feel them! It felt like I had flash lights on my lips, sending out this sign “everyone, come look at my horrible, infected mouth”

All week I’ve felt so down about them, they’re at the horrible scabby stage now when every time I knock them they bleed.

I just wish they would go away!

It’s stupid – the sh*t I’ve been through, and a scabby mouth almost floored me. But my confidence is really low at the moment, so it doesn’t take much to knock it out of me!

On top of this hubby has been working 10 hour days which has meant I’ve got home first, and made the lunches for the following day.

I never realised such a small thing could be that bit too much, the amount of energy it’s taken out of me to do that has been eye opening! 1 spoon too many obviously.

(For those that don’t know about spoonies – check out the spoon theory- it kind of makes sense!

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Anyway – all this has meant I’ve not made the best choices food wise! It’s not too been horrific, but not very nutritional either!

Breakfast & lunches have been fine, but teas have been something quick and easy, something on toast or a sandwich! Friday night I actually had hot cross buns for tea!

So I was more than happy with this weeks weight loss!

Next week I plan to be better!

This weekend has been lovely! I had SW cooked breakfast, and steak for tea yesterday. Even had jelly & custard dessert! Today it’s my favourite – a full roast dinner – SW friendly obviously. Also making soup for the week – I find taking some in with my lunch stops me snacking on syns.

Just got to keep at it for the week and I will be sorted.

And I’ve slept lots! Which was much needed.

Hubby isn’t working long hours either – so it’s all positive!

See you next week!

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

It wasn’t pretty!

Week 1.

16stone 1.5lb.

4 stone 1.5lb to goal

15lb +.

48000 steps

Well I went! And it was as bad as I’d known it would be! 15lb on since I last went before Christmas!

But I was ok,

I never wobbled when I stepped on the scales

I never wobbled while I helped out with the newbies

I never wobbled as I sold the raffle tickets

And all was good!

Until our consultant came to me first, and started talking about what a tough couple of months I’d had!

I told her – don’t – I’ll cry, but hey ho! We are there to share, and I cried!

Rest of the class was fine, everyone had done well, and as always I was proud of them!

And I love seeing them all and having a natter!

Rest of the day was spent coming to terms with how far I’ve got to go, I’ve actually got to lose 12.5lb before I get back to my original start weight!

But I’m determined this time. I read something the other day that the main cause of death fir us Lupies is actually weight related issues, and I quite like living so the weight is coming off!

I’ve been out for a walk both days, today I even jogged for a bit, which was THE most amazing feeling!

Soup & lunches prepared for the week, evening meals planned!

This week will be a success!

Enjoy yours, whatever you’re up to!

πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

Instagram #michelle1969

Obsessed with β€œon this day”!

I’m a bit of a FB addict, always have been, always will be, and this is a bit about that!

For those that don’t know, there’s a feature on there called “on this day”. Basically it shows you what you posted “on this day” over previous years.

And for the last few months I’ve become a bit obsessed with it! From about September last year I started checking it out, to see if there was any hint of what was to come, but no, there was nothing, not even particularly tired! I’d recently run a 10k, I was eating healthily, I was sleep well, work was good….

Then from October onwards I was checking what happened, a lot of my time in hospital was a blur so I was looking for clues. It didn’t help much as I went a bit FB awol! This is how a lot of my friends knew I was seriously ill – because I vanished!

After that I got to December and saw that I’d come home, and January I’ve been watching my progress.

Over the next few months I will be watching how I got stronger and returned back to work, and how I managed with that.

Then hopefully my obsession will fade a bit …..

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #Michelle1969

Week 1 didn’t go to plan!

Yesterday was bad!

I’ve not slept properly the last couple of nights as I’ve been stressy over a few things – work, my weight, my pains, so I was in a bit of a state!

I also knew I was going to have put over a stone on at weigh in, and knowing that I had to go and face up to that officially wasn’t helping with my mood.

Anyway – I got ready, went to wait for the bus and the stupid thing didn’t turn up! As I was going just for weigh in, I had no spare time to get there any other way so didn’t go.

We then went to our local beach, had breakfast, went for a walk for an hour, did a bit of shopping and came home

The beach is my calm place, I love being there! I took lots of pictures, breathed in the sea air, and thought lots.

And that’s when I cried!

I cried lots, I broke down. I just sobbed uncontrollably for 30 minutes. I cried it all out! I cried until there was nothing left.

I think I got it out of my system! I hope I got it out of my system! Till next time anyway! I do have a meltdown from time to time, and yesterday was one of those times.

Anyway – the rest of the week has been ok, my food had been reasonably good, and I’d got almost 40000 steps in. I’ve planned all of next week too. I’ve actually lost 8lb unofficially since last Tuesday so at least delaying the official one may go in my favour.

Until next week …..

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #Michelle1969

A Positive Week Needed

Had a bit of a crappy week last week! Had a really upset tummy, and very little energy or motivation!

Worked from home all week and pretty much avoided as many people as possible.

Had some tests at the doctors, and just waiting for the results to see if I have an infection or not! Because of some of the tablets I’m on, if it is an infection, it will floor me! Such fun!

Anyway – my eating wasn’t completely on plan, didn’t eat anywhere near enough fruit and veg, and had two takeaways. I did pick the “healthy” option though, so a small victory there.

I was dreading Saturday but I actually lost a 1lb! More than happy! Definitely felt like I’d been let off with that one.

So off I went to get my hair cut, happy as a happy thing, and my hairdresser worked his usual magic on me. I always without fail feel gorgeous when I leave him, even if that feeling only lasts a while, it is such a good feeling! I’ve gone blonde as well, which is a bit of a shock, but hey, I’ve never been known to stay the same colour for too long!

This week – I’m going to make a really big effort! Food will be good, I will go into the office, and get some extra steps in, and I will stay as happy as possible!

I’ve had a bit of a tidy up too! Cleared some more books away, cried a bit when I put my running books away, but I will get them out again one day, I have to, I can’t think that I will never run again.

Looks like we are about to go into autumn very quickly, weather is horrible, but that just means snugly nights, and warming casseroles, all good!

And fingers crossed, my bug doesn’t last much longer!

Have a good week everyone

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