My week off!

So my week off didn’t go to plan!   

Turns out I can’t do as much as I used to! But never mind, still did lots, and still had a wonderful, relaxing break! 
 
I also promised pictures, so pictures I will add! 

We took the week off as it was hubby’s birthday, and we celebrated with lots of food!  Meals out & takeaways!  


We visited two local seaside reaorts!


 
Played on a pirate ship

Had the nicest ice cream – Jaffa cake flavour


Played on a swing


 Celebrated Mum’s 70th birthday – with more food


And slept lots!    Most of our days out were actually mornings out, followed by a snooze, which has actually made our time appear longer.

Oh and I got a new Tattoo!  A purple butterfly to signify Lupus awareness

So, yes, a good week off, and really don’t want to go back tomorrow! 

Unfortunately the only lottery win I had was a lucky dip ticket! 

💙💙💙

Today I cried!

So today I cried, then I cried a bit more, and just in case I hadn’t cried enough – I cried some more

I cried because I was tired

I cried because my leg hurt

I cried because I’m struggling with work

I cried because I have Lupus

I cried because I will most probably never run a marathon

I cried because I ate too much chocolate yesterday

I cried because I was frightened on Thursday as I had fluid retention.

I cried because I was fed up

I  cried because I want to be normal again

I cried because all this crap happened to me

I cried because it was sunny and I can’t sit out in it anymore

It was needed!  Hopefully I’ve now got it out of my system till the next time I have a meltdown!

💙💙💙

Today’s a bad day

So!  Today I’ve woken up in a lot of pain!  My legs are hurting, my boobs are, my teeth are, and I’ve got a headache!

I didn’t have to get up till 10am today!  But no – 6am and I was wide awake.

I know what’s up!  I’m going out this evening!  My old manager is retiring and we are off out for a posh meal!  And I know I will have a lovely time, but ever since I’ve been ill, my confidence is shot!  And I’m all of a dither about meeting up with people I haven’t seen for ages and being in a social situation again!  And having to stay awake past 9pm!

Completely and utterly stupid I know, but that’s me just now!

And the way I will cope with today!  My makeup will be as good as it gets, my hair – well not much I can say about my hair – I will make the most of it, and I will eat my way through today!  I did a quiz once that said I wasn’t an emotional eater!  Yeah right!!!
💙💙💙

A Bit About Me!

26th March 2017

Up until last October, I was quite normal!  I am married, we have one son, almost 2o years old.  I have a full time job which I love.  I try and eat healthy most of the time & I loved to – that was my thing!  I’d tried lots of other different things, but soon became bored – running is the only thing I’ve stuck with for so long (about 11 years now) .

Then bang!  My whole life was turned upside down!  I was admitted to hospital with water retention- I’d put on 20lb of fluid over the weekend, and figured I should get it checked out!   I was kept in to have a kidney biopsy to find out what was going wrong!  This all went to plan, but afterwards it wouldn’t stop bleeding! Three ops, and four days later, I had one kidney less, and the other one wasn’t working anymore & I was put on dialysis.    Had a couple of blood transfusions as I lost so much blood, and hubby was told a couple of times I wasn’t going to make it.

9 weeks later,  I’d had numerous infections, an allergic reaction to antibiotics which resulted in me getting Steven Johnsons syndrome (a life threatening skin condition which resulted in me shedding my skin), pneumonia, c-dif, I’d been in ICT, HDU, and several other wards in between.  I’d lost 2 stone in weight (as well as the 20lb fluid) , and lots of muscle wastage, could barely walk with out sticks, and I got to go home the day before Christmas Eve!

The last few months have been spent building my strength back up, and try to get back to normal.  I have now been diagnosed with Lupus, and am constantly at the hospital seeing one consultant or the other – they are treating me with kid gloves as I went through so much while in hospital.

And now I’m starting back to work, and trying to run again.

This blog  will be my ramblings – happy and sad,  my feelings and thoughts.

I hope you enjoy reading them as much as I’m going to enjoy writing them.

 

PS I’m not a writer, I’m not particularly witty or entertaining- and this could end up very boring – I’m just me 😊
💙💙💙