A year back in work

A year ago today I went back to work after my drama queen moment and 5 months off! It was the most scary, exciting, emotional day!

I’m extremely lucky to work with the most wonderful people who welcomed me back with lots of hugs and love and tears.

But it was oh so scary! I didn’t know if I was ready, I didn’t know if I could do it, I didn’t know if I was strong enough! Physically or emotionally!

But being the stubborn madam I am, off I went and a year has passed.

I’m still not sure if I’m ready – physically or emotionally – it’s starting to be hard now! I just started crying on Sunday and told hubby I didn’t want to work anymore as it hurts too much! I have no idea where that came from! I didn’t know I was feeling like that!

I think it’s just because the pain is so bad just now, and my depression is back with a vengeance!

I’m off to the doctors tomorrow to talk about pain management and maybe upping my antidepressants, and then hopefully I can go back to loving my job!

I’ve still got a long way to go till I can give up work, so I want to enjoy it!

Next year – this post will be more positive!

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Travels Done

No weigh in this week – I will get to that later!

I’ve been completely off plan! I was in Paris with work! Had the most amazing time! Felt a lot more comfortable with everyone and actually asked questions, and didn’t mind talking out loud – with the Dream Team anyway – I kept quiet when the guests were there – but that’s a work in progress! Learnt lots too, and also had it confirmed in my mind that I still have an awful lot still to find out.

Food was gorgeous. We never moved out of the hotel, ate, worked and slept there. All meals were buffet based. Breakfast was very continental. Cold meats, cheeses, pastries, yoghurts & fruit. As well as a cooked breakfast of sorts. Lunch and tea was lots of fish, and shell fish for starters, prawns, salmon, tuna, mackerel, squid, as well as oysters & muscles – although I kept away from them! Main meals – more fish, but also meat, veg & roasties, which I had. And then a yummy dessert.

Three very long days! We met for breakfast at 8am, and finished tea at about 10pm.

I was knackered when I got home, and booked Friday off! I really didn’t have the energy & my pains had well and truly kicked off. 3 days spent sat on the settee in agony taking an awful lot of pain killers. Brain fog has been awful too. I’m half way through saying something and I forget what I was saying. I go to do something and have to ask Hubby what it was I wanted to do.

Which is why there was no weigh in, I just couldn’t make it this week.

Food has been pretty bad this weekend too, I’m going with the excuse that I needed lots of stodge for energy but in all honesty I just didn’t have the motivation to think.

Tomorrow I’m back on track! I’m doing extra easy SP which is. Kick start! Got to lose this bloated feeling and motivate myself a bit. I’m in a proper rut. I think it’s got a lot to do with being fed up with all the pain too, but ,in the back of my mind I think the extra weight isn’t helping.

Well and truly all over the place just now!

Anyway – I’m going to see my doctor on Wednesday to talk about pain management and possibly up my antidepressants -they’re having a hard time keeping me happy just now.

And hopefully things will settle down a bit.

Hope you’re all doing well

Till next week

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Mixed Bag!

Week 8

15 stone 7.5lb.

3 stone 7.5lb to goal

0.5lb loss

37000 steps

Bit of a mixed week! I had good and bad days with my food. I was either exceptionally good or exceptionally bad.

I’m struggling with my pain just now, most days I’m in agony, I’m taking lots of pain killers, and feeling sorry for myself. And I’ve always been an emotional eater, so I’ve been picking. But deep down I really wanted a good week, which is why the good days have happened.

I’m happy with 1/2lb loss! Yes, I wanted more, but I’m beginning to realise that this is going to be a slow and steady journey. I’ve got too many other things going on to want to focus just on eating healthy.

I will be good as much as possible, and I will try and make good choices as often as I can, but if I have a bad time, I’m not going to stress about it. I’ve also made an appointment with my Doctor to discuss pain management & might ask about upping my anti depressants too. I’ve got the best support team though and they know what to do to make things better.

Anyway – other stuff! I had my 30 year work anniversary on Wednesday! It doesn’t feel like 30 years. I’ve been genuinely happy there, I’ve learnt so much, and grown so much. And I work with some of the most wonderful people. They have me, they look out for me, they are there for me, they are my family. And I wouldn’t want to work anywhere else.

I’ve had a moment too! I’ve been dying my own hair for as long as I can remember- I have grey hair to cover – but recently I’ve been going lighter, and have ended up blonde. They didn’t have my normal colour this month so I bought a bleach blonde! And jeez! It worked! Not sure I like it, it’s a bit yellow, but I’ve got lots of purple shampoo that apparently strips the yellow out so fingers crossed.

I’m away with work next week, I’m going to Paris. I love going away, I really do, but I’m tired and sore, and I’m not looking forward to it this time! I’ve also got my confidence & anxiety issues that don’t help! I’ll be fine once I get there, it will fly by, and I will learn lots, but just need to get to Tuesday first.

So! Till next week in my muxed up world……

Much love

Instagram. #michelle1969

March is Autoimmune Disease Awareness

Now this covers lots of diseases – Fibromyalgia, MS, Lupus …..

Most of them are invisible & happen deep with in us.

I can only talk about Lupus as that’s what I’m learning to live with.

There’s the nasty bits, the big scary bits when it causes my body to attack itself – my kidney, but can attack any of your major organs. This bit is managed by lots of tablets and tests though.

It’s the other things, the daily battles. The constant pain, when it hurts to get up, but it hurts to stay still. The constant fatigue, when I can sleep for a whole day and not feel like I’ve had any. Not helped by it hurting to lie down, so I’m tossing and turning trying to find a way to lie that doesn’t hurt quite as much.

It’s coming home most nights after work in agony, having to go up the stairs on all fours as I haven’t got the strength left in my legs to get me up them. Not moving far from the settee all weekend as I have nothing left to give. Going to bed most nights before 9pm in the hope of getting some sleep.

And then there’s the brain fog. This is the scary thing for me. I will be half way through doing something & I then can’t remember what I was doing. I have to sit, and focus, and concentrate so hard till it comes back to me. I do things and don’t remember doing them, I think I’ve done things when I haven’t. I have notes everywhere reminding me what to do on a daily basis.

Then there’s the dizzy spells, the migraines, the anxiety, depression, the constant crying for no reason, the panic attacks …..

There’s the constant worry that I’m going to pick up a bug – with everything else going on, I have nothing left to fight through an illness too, and unfortunately when the tablets I’m on lower my immune system, I’m going to pick them up!

Every day is a constant battle to stay positive & keep smiling when all I really want to do is curl up in a dark corner and hide away from everything

I’m extremely lucky as I have a brilliant team of Doctors looking after me, and the most wonderful friends and family who know what I go through and support me and encourage me and look out for me. Without all you I would struggle a lot more.

So thank you for listening & for being there πŸ’œπŸ’œπŸ’œπŸ’œ

And apologies for the very long waffle.

Brain in Overdrive!

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

19000 steps

No weigh in again this week. I did have every intention of going! Woke up 5 minutes before my alarm, went to the loo, got back into bed, and don’t remember a thing for another 2 hours.

My head is all over the place this week, I think I’ve had too much time on my hands to think.

I know it’s most probably down to me not feeling well, but the ever so wonderful depression is sneaking in again.

I’ve come to the conclusion that I haven’t got the energy or strength to work full time, and live.

For the last year all I’ve done is go to work, and sleep. I get up, go to work, come home, eat, go to bed, and that’s it. Weekends aren’t much more exciting. I go out for an hour or so Saturday morning, make some soup or do some other food prep on Sunday, possibly go out for a walk to our local park and that’s it.

I’m not sleeping properly, even though I’m so incredibly tired all the time. I’m in constant pain, it hurts to sit, it hurts to move.

I’ve tried this for almost ayear now, and it’s not getting any easier, if anything, it’s getting harder.

Now I know all this is due to my Lupus, even the depression comes with it, but I don’t know what to do about it.

I can’t give up work, and I’m not sure I want to, but I certainly don’t want to just work.

I know it’s tough on hubby too, he doesn’t know what to do to make it better for me either, and he worries so very much about me, and I don’t want that, so I’m not talking about it much, trying to hide it, but he sees the pain in my eyes when I stand, or sit for too long.

I figure I need to go and speak to my doctor, see what my options are, but that also feels like admitting defeat, admitting that I can’t cope, and I’m a stubborn madam, I don’t want to give in.

Sure all will be fine once this virus clears properly, but I do need to shake myself up a bit.

Anyway -till next week

Much love

Instagram. #michelle1969

Feeling sorry for myself

This is going to be a very wallowing in self pity post!

Feel free to skip it, and I will return to my normal positive self shortly.

So! I’m not well! I have a viral infection! And I feel like crap!

Now I don’t know if it’s the virus that’s so bad, or the Lupus that makes it worse, or the meds I’m on that make me more prone! Whatever the reason – I wish it would do one!

Started off last Wednesday with a sore throat, and went down hill rapidly from then.

A bit of background – Lupus is an autoimmune disease which means my body basically attacks itself, and I’m on really strong tablets to lower my immune system to protect my body a bit.

Unfortunately this means that I pick up anything & everything.

It’s currently 1am, and I’m lying in bed in pain!

Everything is hurting, and I mean everything! The worst pain is in my legs, my shins and ankles, and my hips! But my hands are bad too, and my shoulders.

When I stand up at the moment, my joints are in agony, and I have to stand for a minute or two for them to adjust to the new angle! I’m having to go up the stairs on all fours as my knees can’t support the weight while stepping!

I’m struggling to hold my phone, actually, I’m not holding it, it’s laying on my pillow & I’m typing with one finger.

On top of this, my throat is sore, it hurts to swallow! Although I have found that whole meal toast scratches my throat and gives me some relief! My nose is streaming! I’m doing a very good impression of Rudolph! And I have the most awful hacking cough! That alternates between making me sick and crying!

Been to the doctors and she’s signed me off work for 2 weeks! My chest is clear at the moment, but I’m to do deep breathing exercises to keep it that way! I have a slight temperature and a slightly inflamed throat. Nothing to risk a course of antibiotics just yet! I’ve just got to ride it out for now. Plenty of fluids, plenty of painkillers, plenty of rest!

I’ve got my normal bloods in the morning so that will put my mind to rest that it is just a virus and not a flare! I do know it’s not, but no harm in being sure!

I hate being ill so much, I hate not being able to have fun with hubby, or just enjoy being with him! Both of us work full time and are shattered when we get home, so our time together when we are awake is precious.

I hate being ill so much, I hate seeing the concern and worry in my sons eyes! He really struggled when I was bad, and he is so protective of me now!

I hate being ill so much, I hate worrying my mum & dad! They want to look after me, and they struggle with not being able to.

I hate being ill so much, I hate hearing my friends worry about me!

I hate being ill so much, I hate not being able to do things around home! I don’t do an awful lot anyway, but putting the extra pressure on hubby to look after me as well is horrible.

I hate being ill so much, I hate letting my boss down! I love my job, and enjoy it, and have a lot of responsibility & I can’t be there to get it done!

My dying swan act is still very raw for my close ones, and I know how difficult all this is for them.

The sooner I get over this, the better! So Doctors orders will be followed.

If you made it this far, thank you for listening! Normal service will resume shortly.

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The best laid plans …..

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

24000 steps

Floored this week. Wednesday afternoon I started with a sore throat, nothing much really, just a bit dry.

Thursday morning, just after midnight I woke up in agony! Literally everything hurt, my feet, my ankles, my shins, as well as all the normal bits that hurt daily, only so much worse. And my head! I have no words!

I honestly couldn’t lie or sit in any position as it hurt to touch anything, I didn’t know what to do with myself.

Took the day off work and phoned my nephrologist who told me I needed to speak to my rheumatologist. He thought it was “just” a flu bug, rather than a flare, and told me to drink plenty, take regular pain killers – which I do anyway, and bed rest. If no better on Monday I should phone back. It was a relief to know they didn’t think it was a flare – that was freaking me a bit.

And that’s pretty much been me for the last 4 days.

I’ve stopped crying with the pain now at least, but it’s gone to my chest and my nose has kicked off today. But I slept last night, which is the best feeling.

So no weigh in, but I did sneak a peek on my scales, and I’m happy with how things are going, at least I haven’t had the energy to go off plan either.

I’m beginning to realise there’s more to this Lupus thing than I first thought. Yes, I know it’s serious, and I know it’s bad, and it’s going to effect my life, but I’ve had a couple of bugs in the last couple of months, and they have both completely floored me. Now I don’t know if that’s down to the Lupus, or the meds I’m on, or a combination of the both, but whatever it is, it’s not good, it’s getting me down, and really struggling to find the positive in all of this just now. I hate having no control, I hate not being to get up and fight through it, I hate having to give into it, I hate being unreliable.

Anyway – till next week ….

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

Recurring Dream

The last couple of weeks I’ve had the same dream, actually that’s not strictly true – they’ve been different dreams, but always had the same ending.

With the sound of a drill!

I know where this is coming from, but I have no idea why.

When I was in hospital, one of the things I remember is waking up hearing a drill, and I had no idea why, it just didn’t make sense, I knew I was in hospital, not a dentist, so where was it coming from?

Stupidly I asked!

Oh! We can’t get a line in anywhere so we are drilling through your shin!

Oh ok then! and that’s all I remember about that, I was out of it again.

When I did come round again, sure enough I had something sticking out of my leg. They didn’t end up using it, but it was there in case my veins crashed again.

So that’s where it’s coming from.

Why it’s started playing on my mind I don’t know.

After I’d been home for a few weeks, I wrote down all my experiences, and what had happened, the bits I remember, and the bits Hubby and Mum & Dad told me.

I’ve re-read this today, and the drilling is there, but just as an after thought, and only a line or two about it, so I figure it wasn’t that traumatic in comparison to everything else that happened.

So pretty much – I’m non the wiser.

Hopefully it’ll go away now I’ve shared it here, and I can go back to my normal wacky dreams.

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Instagram. #michelle1969

Trying to run again

The last few weekends I’ve been out ‘running’ and when I say running I actually mean power walking with a few attempts at a very slow jog.

The two times I’ve been out have been completely different experiences.

The first time was wonderful and magical and exciting.

I have always loved running with all my heart, and I have missed it so very much. Going out and actually putting a bit of speed into my walk was …… I don’t even have the words for how I felt – it was just so good! It reminded of how much I enjoy it, how free I feel, how all my troubles fall away! And I’ve got so many more now – running is needed.

I was on a high for the rest of the day.

The second time I went out – it was painful! Nothing felt right, my walking was off, and when I did attempt to jog, it actually felt like I’d forgotten how to run. My legs hurt, my chest was tight, even my neck and shoulders hurt.

It was horrible and I was so glad it was over. I spent the rest of the day feeling sorry for myself!

It’s taken me a few days to write this as it really upset me – my running is the one thing I’m holding on to – in my mixed up head I think if I can run again everything will be better.

I know it won’t! And I know that I will never run again like I used to! But it still hurt knowing how far away I am from any normality.

Anyway – next weekend I will go out again! I need to get the feeling of the first time out back into my heart, not the second time.

I’m not one to say never, being a stubborn madam, so let’s just wait and see what happens next time.

πŸ’œπŸ’œπŸ’œπŸ’œ

Instagram. #michelle1969

A Tough Week!

Week 3

15 stone 11lb.

3 stone 11lb to goal

-2.5

43000 steps

This has been a really tough week for a few reasons!

I think the previous week caught up on me and I was so very tired, and just a little bit run down!

Sunday evening my lips started tingling! A sure sign the dreaded coldsores were about to strike!

It’s been over 2 years since I’ve had 1, and I honestly believed I was done with them! But they reminded me with a vengeance I wasn’t!

Monday morning saw me wake with fat lips! 4 massive, stinging ugly cold sores, and I just wanted to cry!

All day I could feel them! It felt like I had flash lights on my lips, sending out this sign “everyone, come look at my horrible, infected mouth”

All week I’ve felt so down about them, they’re at the horrible scabby stage now when every time I knock them they bleed.

I just wish they would go away!

It’s stupid – the sh*t I’ve been through, and a scabby mouth almost floored me. But my confidence is really low at the moment, so it doesn’t take much to knock it out of me!

On top of this hubby has been working 10 hour days which has meant I’ve got home first, and made the lunches for the following day.

I never realised such a small thing could be that bit too much, the amount of energy it’s taken out of me to do that has been eye opening! 1 spoon too many obviously.

(For those that don’t know about spoonies – check out the spoon theory- it kind of makes sense!

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Anyway – all this has meant I’ve not made the best choices food wise! It’s not too been horrific, but not very nutritional either!

Breakfast & lunches have been fine, but teas have been something quick and easy, something on toast or a sandwich! Friday night I actually had hot cross buns for tea!

So I was more than happy with this weeks weight loss!

Next week I plan to be better!

This weekend has been lovely! I had SW cooked breakfast, and steak for tea yesterday. Even had jelly & custard dessert! Today it’s my favourite – a full roast dinner – SW friendly obviously. Also making soup for the week – I find taking some in with my lunch stops me snacking on syns.

Just got to keep at it for the week and I will be sorted.

And I’ve slept lots! Which was much needed.

Hubby isn’t working long hours either – so it’s all positive!

See you next week!

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Instagram. #michelle1969