Brain in Overdrive!

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

19000 steps

No weigh in again this week. I did have every intention of going! Woke up 5 minutes before my alarm, went to the loo, got back into bed, and don’t remember a thing for another 2 hours.

My head is all over the place this week, I think I’ve had too much time on my hands to think.

I know it’s most probably down to me not feeling well, but the ever so wonderful depression is sneaking in again.

I’ve come to the conclusion that I haven’t got the energy or strength to work full time, and live.

For the last year all I’ve done is go to work, and sleep. I get up, go to work, come home, eat, go to bed, and that’s it. Weekends aren’t much more exciting. I go out for an hour or so Saturday morning, make some soup or do some other food prep on Sunday, possibly go out for a walk to our local park and that’s it.

I’m not sleeping properly, even though I’m so incredibly tired all the time. I’m in constant pain, it hurts to sit, it hurts to move.

I’ve tried this for almost ayear now, and it’s not getting any easier, if anything, it’s getting harder.

Now I know all this is due to my Lupus, even the depression comes with it, but I don’t know what to do about it.

I can’t give up work, and I’m not sure I want to, but I certainly don’t want to just work.

I know it’s tough on hubby too, he doesn’t know what to do to make it better for me either, and he worries so very much about me, and I don’t want that, so I’m not talking about it much, trying to hide it, but he sees the pain in my eyes when I stand, or sit for too long.

I figure I need to go and speak to my doctor, see what my options are, but that also feels like admitting defeat, admitting that I can’t cope, and I’m a stubborn madam, I don’t want to give in.

Sure all will be fine once this virus clears properly, but I do need to shake myself up a bit.

Anyway -till next week

Much love

Instagram. #michelle1969

Advertisements

The best laid plans …..

Week 5

15 stone 10lb.

3 stone 10lb to goal

No weigh in

24000 steps

Floored this week. Wednesday afternoon I started with a sore throat, nothing much really, just a bit dry.

Thursday morning, just after midnight I woke up in agony! Literally everything hurt, my feet, my ankles, my shins, as well as all the normal bits that hurt daily, only so much worse. And my head! I have no words!

I honestly couldn’t lie or sit in any position as it hurt to touch anything, I didn’t know what to do with myself.

Took the day off work and phoned my nephrologist who told me I needed to speak to my rheumatologist. He thought it was “just” a flu bug, rather than a flare, and told me to drink plenty, take regular pain killers – which I do anyway, and bed rest. If no better on Monday I should phone back. It was a relief to know they didn’t think it was a flare – that was freaking me a bit.

And that’s pretty much been me for the last 4 days.

I’ve stopped crying with the pain now at least, but it’s gone to my chest and my nose has kicked off today. But I slept last night, which is the best feeling.

So no weigh in, but I did sneak a peek on my scales, and I’m happy with how things are going, at least I haven’t had the energy to go off plan either.

I’m beginning to realise there’s more to this Lupus thing than I first thought. Yes, I know it’s serious, and I know it’s bad, and it’s going to effect my life, but I’ve had a couple of bugs in the last couple of months, and they have both completely floored me. Now I don’t know if that’s down to the Lupus, or the meds I’m on, or a combination of the both, but whatever it is, it’s not good, it’s getting me down, and really struggling to find the positive in all of this just now. I hate having no control, I hate not being to get up and fight through it, I hate having to give into it, I hate being unreliable.

Anyway – till next week ….

💜💜💜💜

Instagram. #michelle1969

Recurring Dream

The last couple of weeks I’ve had the same dream, actually that’s not strictly true – they’ve been different dreams, but always had the same ending.

With the sound of a drill!

I know where this is coming from, but I have no idea why.

When I was in hospital, one of the things I remember is waking up hearing a drill, and I had no idea why, it just didn’t make sense, I knew I was in hospital, not a dentist, so where was it coming from?

Stupidly I asked!

Oh! We can’t get a line in anywhere so we are drilling through your shin!

Oh ok then! and that’s all I remember about that, I was out of it again.

When I did come round again, sure enough I had something sticking out of my leg. They didn’t end up using it, but it was there in case my veins crashed again.

So that’s where it’s coming from.

Why it’s started playing on my mind I don’t know.

After I’d been home for a few weeks, I wrote down all my experiences, and what had happened, the bits I remember, and the bits Hubby and Mum & Dad told me.

I’ve re-read this today, and the drilling is there, but just as an after thought, and only a line or two about it, so I figure it wasn’t that traumatic in comparison to everything else that happened.

So pretty much – I’m non the wiser.

Hopefully it’ll go away now I’ve shared it here, and I can go back to my normal wacky dreams.

💜💜💜💜

Instagram. #michelle1969

Trying to run again

The last few weekends I’ve been out ‘running’ and when I say running I actually mean power walking with a few attempts at a very slow jog.

The two times I’ve been out have been completely different experiences.

The first time was wonderful and magical and exciting.

I have always loved running with all my heart, and I have missed it so very much. Going out and actually putting a bit of speed into my walk was …… I don’t even have the words for how I felt – it was just so good! It reminded of how much I enjoy it, how free I feel, how all my troubles fall away! And I’ve got so many more now – running is needed.

I was on a high for the rest of the day.

The second time I went out – it was painful! Nothing felt right, my walking was off, and when I did attempt to jog, it actually felt like I’d forgotten how to run. My legs hurt, my chest was tight, even my neck and shoulders hurt.

It was horrible and I was so glad it was over. I spent the rest of the day feeling sorry for myself!

It’s taken me a few days to write this as it really upset me – my running is the one thing I’m holding on to – in my mixed up head I think if I can run again everything will be better.

I know it won’t! And I know that I will never run again like I used to! But it still hurt knowing how far away I am from any normality.

Anyway – next weekend I will go out again! I need to get the feeling of the first time out back into my heart, not the second time.

I’m not one to say never, being a stubborn madam, so let’s just wait and see what happens next time.

💜💜💜💜

Instagram. #michelle1969

Week 1 didn’t go to plan!

Yesterday was bad!

I’ve not slept properly the last couple of nights as I’ve been stressy over a few things – work, my weight, my pains, so I was in a bit of a state!

I also knew I was going to have put over a stone on at weigh in, and knowing that I had to go and face up to that officially wasn’t helping with my mood.

Anyway – I got ready, went to wait for the bus and the stupid thing didn’t turn up! As I was going just for weigh in, I had no spare time to get there any other way so didn’t go.

We then went to our local beach, had breakfast, went for a walk for an hour, did a bit of shopping and came home

The beach is my calm place, I love being there! I took lots of pictures, breathed in the sea air, and thought lots.

And that’s when I cried!

I cried lots, I broke down. I just sobbed uncontrollably for 30 minutes. I cried it all out! I cried until there was nothing left.

I think I got it out of my system! I hope I got it out of my system! Till next time anyway! I do have a meltdown from time to time, and yesterday was one of those times.

Anyway – the rest of the week has been ok, my food had been reasonably good, and I’d got almost 40000 steps in. I’ve planned all of next week too. I’ve actually lost 8lb unofficially since last Tuesday so at least delaying the official one may go in my favour.

Until next week …..

💜💜💜💜

Instagram. #Michelle1969

I have no words

Well actually I do now, but for the last two weeks I haven’t.  I have been struggling so much with everything that I’ve not even been able to write here – the safe place I started just to share my deepest feelings and emotions.

So!  I’ve been tired, so unbelievably tired, and two trips away to different offices has floored me!  I’ve been in pain with my joints, I’m struggling to walk up the stairs,  the side effects have kicked in with my new tablets giving me the most awful stomach pains, and upset tummy – not the nicest thing when away and visiting other people.   And the heat!!!  The heat is just unbearable!  And I hate that I can’t go and lie in the sun all day like I used to.  
And I am just so down.  And it’s hurting.  I am such a positive person normally, and I just haven’t got the energy just now.  I can’t exercise, my food has been awful, I’ve put weight on so all my clothes feel tight and uncomfortable. I’m  not sleeping properly, and I’m constantly crying.   My boss actually told one of the girls I was visiting to look after me as I’m not coping just now.    I’m a complete and utter basket case.  I know hubby is struggling with what to do for me too, as he’s never seen me like this, and it hurts that I’m hurting him, but I just can’t shake it.

I don’t remember ever feeling this down, even when I was in hospital for 9 weeks, I kept my positivity, and brightness.

I do know how far I’ve come, and how much better I am, but this just seems continuous, with no end in sight, and I honestly don’t want to do it anymore, I just want to curl up and go to sleep.

I’ve spoken to my consultant, and she thinks it would be a good idea to have a course of anti depressants – my idea just to get me through the next few months, to get me out of this downward spiral that I seem to have gotten myself into – so I’m going to make an appointment to see my doctor this week and hopefully things will start looking up soon.

Watch this space 💜💜💜

Today’s a bad day

So!  Today I’ve woken up in a lot of pain!  My legs are hurting, my boobs are, my teeth are, and I’ve got a headache!

I didn’t have to get up till 10am today!  But no – 6am and I was wide awake.

I know what’s up!  I’m going out this evening!  My old manager is retiring and we are off out for a posh meal!  And I know I will have a lovely time, but ever since I’ve been ill, my confidence is shot!  And I’m all of a dither about meeting up with people I haven’t seen for ages and being in a social situation again!  And having to stay awake past 9pm!

Completely and utterly stupid I know, but that’s me just now!

And the way I will cope with today!  My makeup will be as good as it gets, my hair – well not much I can say about my hair – I will make the most of it, and I will eat my way through today!  I did a quiz once that said I wasn’t an emotional eater!  Yeah right!!!
💙💙💙